Review
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Kök Hücre Nakli Sürecinde Aile Merkezli Onkolojik Sosyal Hizmet Uygulaması

Year 2019, Volume: 30 Issue: 2, 690 - 715, 30.05.2019
https://doi.org/10.33417/tsh.572231

Abstract

Lösemi ve
lenfoma gibi hematolojik kanser türlerinde uygulanan kök hücre nakli tedavisi
yetişkin hasta birey ve ailesini fiziksel sorunlarla birlikte psiko-sosyal sorunlarla
da oldukça örselemektedir. Türkçe literatürde kök hücre nakli sürecinde sosyal
hizmet uzmanı rollerini inceleyen çalışmaların azlığı ve onkoloji
hastanelerinde psiko-sosyal hizmetlere duyulan ihtiyaç bu çalışmanın sorununu
oluşturmaktadır. Hasta bireyin aileden izole olmasını, aile içindeki rollerin
değişimini ve yaşamsal rutinin belirsiz bir süre boyunca bozulmasını öngören bu
hastalık ve tedavi süresince sosyal hizmet birimlerinin hasta ya da birey odaklı
değil aile merkezli çalışması gerektiği tartışılmıştır. Buna göre kök hücre
nakli öncesinde teşhis aşamasında devreye girmesi gereken onkolojik sosyal
hizmet birimlerinin, tedavi sırasında, tedavi sonrasında farklı müdahaleler ve
rollerde bulunması gerekmektedir. Bu çalışmada onkoloji hastaneleri başta olmak
üzere hastanelerde onkolojik sosyal hizmet birimlerinin kurulması, kanser
hastalarına ve ailelerine aile merkezli ve aile sisteminin dengesini gözeten hizmet
verilmesi, ailelere çocukların ve hastanın bakımı, finansal sorunlar gibi
konularda danışmanlık verilmesi, onkolojik sosyal hizmet birimlerinin
çocukların dışsallaştırılmamasına önem göstermesi ve çocukları ebeveynlerinin
sağlık durumu hakkında bilgilendirmesi gerektiği belirtilmiştir. 

References

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  • Baker, F., Denniston, M., Zabora, J.R. et al. (2003). Cancer problems in living and quality of life after bone marrow transplantation, Journal of Clinical Psychology in Medical Settings, 10, 27.
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  • Bona, K., London, W. B., Guo, D., Abel, G., Lehmann, L., & Wolfe, J. (2015). Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biology of Blood and Marrow Transplantation, 21(2), 312-318.
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  • Kennedy, V.L. ve Lloyd-Williams, M. (2009). How children cope when a parent has advanced cancer. Psycho-Oncology, 18(8), 886–892.
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  • Molassiotis, A., & Morris, P.J. (1998). The meaning of quality of life and the effects of unrelated donor bone marrow transplants for chronic myeloid leukemia in adult long-term survivors. Cancer Nursing, 21, 205-211.
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Family-Centered Oncology Social Work Practice in Stem Cell Transplantation Process

Year 2019, Volume: 30 Issue: 2, 690 - 715, 30.05.2019
https://doi.org/10.33417/tsh.572231

Abstract

The treatment of stem cell transplantation
in hematological cancers such as leukemia and lymphoma is detrimental to the
adult patient and his family, along with the physical and psychosocial
problems. The inefficient number of studies investigating the role of social
workers in stem cell transplantation in Turkish literature and the need for
psychosocial services in oncology services constitute the problem of this
study. It was discussed that the social work services should provide family
centered support before, after and during the treatment. Accordingly, oncology
social work units should be involved in the diagnosis phase before the stem
cell transplantation process and continue their services after the discharge.
In this study, it was discussed that oncology hospitals should establish oncology
social work units that specializes in family-centered work, counselling should
be provided for family members on financial issues, caring for the children and
for the patient. Oncology social work units should also pay attention not to
externalize the children and inform them about their parents' health status. 

References

  • Adelstein, K. E., Anderson, J. G., & Taylor, A. G. (2014). Importance of meaningmaking for patients undergoing hematopoietic stem cell transplantation. Oncology Nursing Forum, 41(2), e172-e184.
  • Armoogum, J., Richardson, A., Armes, J. (2013). A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients, Support Care Cancer, 21(4), 977-986.
  • Baker, F., Denniston, M., Zabora, J.R. et al. (2003). Cancer problems in living and quality of life after bone marrow transplantation, Journal of Clinical Psychology in Medical Settings, 10, 27.
  • Beattie, S. ve Lebel, S. (2011). The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review. Psycho-Oncology, 20, 1137–1150.
  • BetheMatch. (2018). Caregiver resources. Erişim tarihi (02.11.2018). https://bethematch.org/patients-and-families/caregivers-and-transplant/caregiver-resources/.
  • Bevans, M.F., Sternberg, E.M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of American Medical Association. 307(4),398–403.
  • Bona, K., London, W. B., Guo, D., Abel, G., Lehmann, L., & Wolfe, J. (2015). Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biology of Blood and Marrow Transplantation, 21(2), 312-318.
  • Boyle, D., Blodgett, L., Gnesdiloff, S., White, J., Bamford, A., et al., (2000). Caregiver quality of life after autologous bone marrow transplantation. Cancer Nursing, 23(3), 193-203.
  • Chow, K., & Coyle, N. (2011). Providing palliative care to family caregivers throughout the bone marrow transplantation trajectory. Journal of Hospice and Palliative Care Nursing, 13(1), 7–13.
  • Christ, G., et al, (2015). Handbook of oncology social work: psychosocial care for people with cancer. London: Oxford University Press.
  • Clipp, E. C., & George, L. K. (1992). Patients with cancer and their spouse caregivers. Perceptions of the illness experience. Cancer, 69(4), 1074-1079.
  • Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009, May). Psychological issues of stem cell transplant. In Seminars in oncology nursing (Vol. 25, No. 2, pp. 139-150). WB Saunders.
  • Curbow, B., Somerfield, R., Baker, F., Wingard, J. R., & Legro, M. W. (1993). Personal changes, dispositional optimism, and psychological adjustment to bone marrow transplantation. Journal of Behavioral Medicine, 16, 423–443.
  • Engel, G. L. (1977). The need for a new medical model: a challenge for biomedicine. Science, 196,129–136.
  • Epley, P., Summers, J. A. ve Turnbull. A. (2010). Characteristics and trends in family-centered conceptualizations, Journal of Family Social Work, 13(3), 269-285.
  • Erdoğan, Z. ve Yavuz, D. E. (2014). Kanserli hastaların bakım vericilerinde yaşam kalitesi. Arşiv Kaynak Tarama Dergisi, 23(4),726-736.
  • Ezra, E. ve Chi, M. (2015). When the other shoe drops: unique fears and challenges of recurrent disease, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.107-112) içinde.New York, NY: Oxford University Press.
  • Green, S. ve Irish, T. (2015). Integrating spirituality in oncology care. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Harper, F. W., Peterson, A. M., Albrecht, T. L., Taub, J. W., Phipps, S., & Penner, L. A. (2016). Satisfaction with support versus size of network: Differential effects of social support on psychological distress in parents of pediatric cancer patients. Psycho‐Oncology, 25(5), 551-558.
  • Hedlund, S. (2015). Oncology social work: Past, present and future. Chris, G., Messner, C. ve Behar, L. (Ed.) Handbook of oncology social work psychosocial care for people with cancer (s.9-19) içinde.New York, NY: Oxford University Press.
  • Huizinga, G,A, Visser. A, Zelders-Steyn. Y.E, Teule. J.A, Reijneveld. S.A, Roodbol. P.F. (2011). Psychological impact of having a parent with cancer. European Journal of Cancer 47, 3, 239–246.
  • Huizinga, G. A., Visser, A., Van der Graaf, W. T. A., Hoekstra, H. J., & Hoekstra-Weebers, J. E. H. M. (2005). The quality of communication between parents and adolescent children in the case of parental cancer. Annals of Oncology, 16(12), 1956-1961.
  • Kapucu, S. ve Karaca, Y. (2008). Kök hücre naklinde hasta değerlendirmesi ve bakım. C.Ü. Hemşirelik Dergisi, 12(3), 52-59.
  • Keefe, F.J., Ahles T.A., Porter L.S., Sutton L.M., McBride C.M., Pope M.S., McKinstry E.T., Furstenberg C.P., Dalton J., Baucom D.H. (2003). The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain, 1-2, 157–162.
  • Kennedy, V. N. (1993). The role of social work in bone marrow transplantation, Journal of Psychosocial Oncology, 11(1), 103-117.
  • Kennedy, V.L. ve Lloyd-Williams, M. (2009). How children cope when a parent has advanced cancer. Psycho-Oncology, 18(8), 886–892.
  • Koenigsmann, M., Koehler, K., Regner, A., Franke, A., & Frommer, J. (2006). Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukemia 1 week after diagnosis. Leukemia Research, 30(9),1127-1134.
  • Langer, S.L., Brown, J.D., Syrjala, K.L. (2009). Intrapersonal and interpersonal consequences of protective buffering among cancer patients and caregivers. Cancer. 115(18),4311–4325.
  • Laudenslager, M.L., Simoneau, T.L., Kilbourn K., Natvig C., Philips, S., Spradley, J., Benitez, P, McSweeney, P., Mikulich-Gilbertson, S.K. (2015). A randomized control trial of a psychosocial intervention for caregivers of allogeneic hematopoietic stem cell transplant patients: effects on distress. Bone Marrow Transplant, 50(8), 1110-1118.
  • Lee, S. J., Loberiza, F. R., Antin, J. H., Kirkpatrick, T., Prokop, L., Alyea, E. P., ... & Fisher, D. C. (2005). Routine screening for psychosocial distress following hematopoietic stem cell transplantation. Bone marrow transplantation, 35(1), 77.
  • Leeson, L.A., Nelson, A.M., Rathouz, P.J., et al. (2015). Spirituality and the recovery of quality of life following hematopoietic stem cell transplantation. Health Psychology, 34, 920–928.
  • Leukemia Foundation. (2018). Accommodation services. Erişim Tarihi: 5.12.2018. https://www.leukaemia.org.au/our-services/accommodation-services/.
  • Mangurian, C., Packman, W., Riano, N. S., & Kearney, J. (2018). The need to support caregivers during pediatric bone marrow transplantation (BMT): a case report. Palliative & supportive care, 16(3), 367-370.
  • Mikulincer, M., Rydall, A., & WaBraun, M. A. (2007). Hidden morbidity in cancer: spouse caregivers. Journal of Clinical Oncology, 25(30), 4829-4834.
  • Molassiotis, A., & Morris, P.J. (1998). The meaning of quality of life and the effects of unrelated donor bone marrow transplants for chronic myeloid leukemia in adult long-term survivors. Cancer Nursing, 21, 205-211.
  • Molassiotis, A., Akker, O., Boughton, B. J. (1997). Perceived social support, family environment and psychosocial recovery in bone marrow transplant long-term survivors. Social Science & Medicine, 44(3), 317-25.
  • Mosher, C. E., Redd, W. H., Rini, C. M., Burkhalter, J. E., & DuHamel, K. N. (2009). Physical, psychological, and social sequelae following hematopoietic stem cell transplantation: a review of the literature. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 18(2), 113-127.
  • Möller, B., Barkmann, C., Krattenmacher, T., ve diğ., (2014). Children of cancer patients: prevalence and predictors of emotional and behavioural problems. Cancer; 120(12), 2361–2370.
  • Oral, M. ve Tuncay, T. (2012). Ruh sağlığı alanında sosyal hizmet uzmanlarının rol ve sorumlulukları. Toplum ve Sosyal Hizmet, 23(2), 93-114.
  • Özbesler, C. ve Çoban. A. İ. (2010). Hastane ortamında sosyal hizmet uygulamaları: Ankara örneği. Toplum ve Sosyal Hizmet, 21(2), 31-46.
  • Özbesler, C. (2017). Tıbbi sosyal hizmete giriş ve tıbbi sosyal hizmet uzmanının rolleri. Attepe Özden, S. ve Özcan, E. (Ed.) Tıbbi sosyal hizmet (s. 3-13). Ankara: Nobel Yayıncılık.
  • Packman, W., Weber, S., Wallace, J., & Bugescu, N. (2010). Psychological effects of hematopoietic SCT on pediatric patients, siblings and parents: a review. Bone marrow transplantation, 45(7), 1134.
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There are 67 citations in total.

Details

Primary Language Turkish
Subjects Sociology (Other)
Journal Section Articles
Authors

Melih Sever 0000-0001-5818-5114

Sunay İl This is me 0000-0002-6034-5794

Publication Date May 30, 2019
Submission Date February 14, 2019
Published in Issue Year 2019 Volume: 30 Issue: 2

Cite

APA Sever, M., & İl, S. (2019). Kök Hücre Nakli Sürecinde Aile Merkezli Onkolojik Sosyal Hizmet Uygulaması. Toplum Ve Sosyal Hizmet, 30(2), 690-715. https://doi.org/10.33417/tsh.572231